It has been a while since we have updated the blog and felt it is necessary to do so and are asking for everyone to be praying. The Demonts are headed to Oakland Hospital as I write this and are checking Ally into the hospital. She has been having quite a few seizures again and after trying to adjust her medication and do as the Neurologist said she still continues to have these episodes. The Neurologist thinks it is best that they run tests again to see how Ally is progressing. With all of the seizures that Ally has had she thinks the encephalitis has flared up again. She will be checking in today for 2-3 days and has to undergo a spinal tap and several other tests to see what is going on. This process is really hard on Ally but this little girl keeps on fighting and does everything she is asked to do. Praise Jesus!!!!!Please pray for her that she continues to be strong and courageous. Pray for her pain that it is at a minimum. Pray for Lisa as she is staying at the hospital with Ally, that she would continue to be strong and that she is able to rest well. Pray for Joe as he is home with the other two girls holding down the responsibilities of the family. Pray for Morgan and Katelyn as they didn't want to see Lisa and Ally leave this morning.
Lets rally together and pray that the Lord shows up in a mighty way these next few days and that they receive answers as to what is going on!!! This has been a long and hard road for this family but they have continued to fight and trust that the Lord has a plan and a purpose!!!!
Thank you everyone for joining with me in praying for all of them. I will keep you posted as I hear!
Thank You
Heather Sutton
Thursday, March 1, 2012
Tuesday, October 4, 2011
Ally Update
Hi Everyone - I talked to Lisa this morning and wanted to update everyone as best that I can. A lot of information was passed my way so if I don't go into a lot of detail I will once I get confirmation as to what I am talking about.
Yesterday Ally had around 20-30 seizures just in a 7-8 hour period. Lisa called her pediatrician who then told them to go to the ER. At the ER they gave her another steroid blast and started the steroids again to help with the swelling. They decided that they needed to transport Ally back to Oakland Kaiser hospital where she will remain until the steroids are completed. She should be able to come home either Friday or Saturday. They also did another spinal tap and everything from that looked good. The doctors told Lisa that some of the test done a while ago came back positive for antibodies. This means that the antibodies could be the thing that has caused the encephalitis. So with that said they are starting her on a very low dose of chemotherapy that she will have once a month. This is so it can bring her immune system down and basically kill anything that is not supposed to be in her body in the first place. They are doing an MRI today at 2pm to be sure everything looks normal and to check on the swelling to see if things have changed.
Please Pray for the them as this is really draining on each one of them. Pray for answers Pray and believe that Ally is going to be healed from this and she can go on living her life as an 8 year old little girl. Pray for strength, wisdom and peace for Joe and Lisa as this has been so hard on them both physically and emotionally. Pray for Katelyn and Morgan as they watch their sister go in and out of the hospital. Pray that the MRI comes back clean and shows NO swelling.
We all need to come together and pray for Healing KNOWING that our LORD JESUS WILL heal her. We know that He is with them every step of the way and knows what HE is doing. This is where our faith in Jesus comes in, lets pray believing!!!
Everyone where ever you are tonight at 7:00pm sharp lets all pray for healing for Ally. There is something about prayers in numbers. Lets cry out to God together!!!!!!
and after that just continue for safe travels, comfort rest, wisdom and the peace that surpasses all understanding
Yesterday Ally had around 20-30 seizures just in a 7-8 hour period. Lisa called her pediatrician who then told them to go to the ER. At the ER they gave her another steroid blast and started the steroids again to help with the swelling. They decided that they needed to transport Ally back to Oakland Kaiser hospital where she will remain until the steroids are completed. She should be able to come home either Friday or Saturday. They also did another spinal tap and everything from that looked good. The doctors told Lisa that some of the test done a while ago came back positive for antibodies. This means that the antibodies could be the thing that has caused the encephalitis. So with that said they are starting her on a very low dose of chemotherapy that she will have once a month. This is so it can bring her immune system down and basically kill anything that is not supposed to be in her body in the first place. They are doing an MRI today at 2pm to be sure everything looks normal and to check on the swelling to see if things have changed.
Please Pray for the them as this is really draining on each one of them. Pray for answers Pray and believe that Ally is going to be healed from this and she can go on living her life as an 8 year old little girl. Pray for strength, wisdom and peace for Joe and Lisa as this has been so hard on them both physically and emotionally. Pray for Katelyn and Morgan as they watch their sister go in and out of the hospital. Pray that the MRI comes back clean and shows NO swelling.
We all need to come together and pray for Healing KNOWING that our LORD JESUS WILL heal her. We know that He is with them every step of the way and knows what HE is doing. This is where our faith in Jesus comes in, lets pray believing!!!
Everyone where ever you are tonight at 7:00pm sharp lets all pray for healing for Ally. There is something about prayers in numbers. Lets cry out to God together!!!!!!
and after that just continue for safe travels, comfort rest, wisdom and the peace that surpasses all understanding
Friday, September 23, 2011
Ally Update
This post is a little long since we have not posted in awhile.
Stanford - While at Stanford Ally's diagnosis was confirmed. She has Limbic Encephelitis which is inflammation in the limbic system of her brain. Also Ally's encephelitis is a Auto-immune encephalitis – caused by her own immune system reacting against itself. We were able to come home last week because there was no point in sitting in a hospital room waiting to see if the treatment has helped. When we saw her neurologist this past Tuesday she was happy about her improvement.
Treatment Plan - Limbic encephelitis does not have a specific drug or treatment plan because every child's case is different. We know for Ally the IVIG hemiglobin transfusions and steroids have been working on helping with the swelling and have made improvements on the encephelitis. Ally will have another round of IVIG next weekend but only should have to be in the hospital in Oakland for 3 to 4 days. Then we wait to see what imrpovement she makes.
How is Ally doing ... That is the question of the day. She's definately the best we have seen her over the last month to month & a half. Ally has been able to go to school for a couple of hours this week, and her memory has gotten better. As thankful as we are for the improvements she is making we are still very aware that the encephelitis is not gone. She still has personality changes, is extremely emotional, and everything has a sense of urgency to her.
Prayer Requests ...
Continued healing
That Ally can go handle go back to school next week even if only part-time
Patience for Joe and I
Dr.'s wisdom on what to do next
Thanks for all of the prayers and support.
Lisa
Stanford - While at Stanford Ally's diagnosis was confirmed. She has Limbic Encephelitis which is inflammation in the limbic system of her brain. Also Ally's encephelitis is a Auto-immune encephalitis – caused by her own immune system reacting against itself. We were able to come home last week because there was no point in sitting in a hospital room waiting to see if the treatment has helped. When we saw her neurologist this past Tuesday she was happy about her improvement.
Treatment Plan - Limbic encephelitis does not have a specific drug or treatment plan because every child's case is different. We know for Ally the IVIG hemiglobin transfusions and steroids have been working on helping with the swelling and have made improvements on the encephelitis. Ally will have another round of IVIG next weekend but only should have to be in the hospital in Oakland for 3 to 4 days. Then we wait to see what imrpovement she makes.
How is Ally doing ... That is the question of the day. She's definately the best we have seen her over the last month to month & a half. Ally has been able to go to school for a couple of hours this week, and her memory has gotten better. As thankful as we are for the improvements she is making we are still very aware that the encephelitis is not gone. She still has personality changes, is extremely emotional, and everything has a sense of urgency to her.
Prayer Requests ...
Continued healing
That Ally can go handle go back to school next week even if only part-time
Patience for Joe and I
Dr.'s wisdom on what to do next
Thanks for all of the prayers and support.
Lisa
Monday, September 12, 2011
Ally is coming home
Hi everyone
I talked to Lisa a bit ago and she said that the Neurologist said that Ally could come home! She will be coming home tonight so pray for their safe drive and that they would be able to come home and rest and Ally can heal quickly. She will have a follow up in a week with her neurologist in Oakland. As I get more details I will keep you all updated.
I talked to Lisa a bit ago and she said that the Neurologist said that Ally could come home! She will be coming home tonight so pray for their safe drive and that they would be able to come home and rest and Ally can heal quickly. She will have a follow up in a week with her neurologist in Oakland. As I get more details I will keep you all updated.
Saturday, September 10, 2011
Standford
Ally, Lisa and Joe arrived at Standford Children's hospital last night. Both Lisa and Joe were able to meet with a team of doctors and feel like they are in the best place for Ally. They met with a neurologist and she will be bringing Ally's case to a team of neurologists to see what the best treatment is for her. Hopefully they will know in the next couple of days what that will be. In the mean time Lisa said that Ally is in ICU and there is a nurse with her constantly! Which is a blessing so Lisa and Joe will now be able to walk out of the room for a bit even if it is just to get fresh air. They will also have an opportunity to use the Ronald McDonald house if a room becomes available where one or both parents can sleep at night without being too far away. What a blessing!!!
Please pray for the doctors as they discuss Ally's case and figure everything out. Pray that a room becomes available for them at the Ronald McDonald House. Pray for wisdom and peace for Joe and Lisa as they will be meeting with these doctors. Pray that Ally remains comfortable through this process. She has been so brave and courageous through everything up to this point and want her to remain that way.
Again if you would like to help with anything please email me at heathrriis@sbcglobal.net
Thanks again for your prayers and support. I will keep you updated as I am updated....
Please pray for the doctors as they discuss Ally's case and figure everything out. Pray that a room becomes available for them at the Ronald McDonald House. Pray for wisdom and peace for Joe and Lisa as they will be meeting with these doctors. Pray that Ally remains comfortable through this process. She has been so brave and courageous through everything up to this point and want her to remain that way.
Again if you would like to help with anything please email me at heathrriis@sbcglobal.net
Thanks again for your prayers and support. I will keep you updated as I am updated....
Friday, September 9, 2011
Ally is moving to Stanford Hospital
Hello everyone
We just got an update on Ally. They are moving her to Stanford Hospital. After Joe and Lisa talked with the doctor this afternoon, the doctor said she had been in contact with Stanford regarding Ally and that this would be the best place for her right now. She will be transported there in a couple hours and will remain there for at least 10 days. They are doing more test and as they know more about them and the results I will keep you updated. Please keep this family in your prayers as they continue to get more answers. Pray for their travels as this place is farther away from home. Pray for Ally as she has endured a lot already and has been so brave and strong. Pray for Kaitlynn and Morgan as they will have one parent at home again for a while.
If you would like to help in anyway please email me @ heathrriis@sbcglobal.net. There is also a link for meals if you wanted to sign up.
http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.takethemameal.com%2Fmeals.php%3Ft%3DAXRB8317&h=wAQCM8YqfAQDKgaqFA8RPaU6GHrcdwdSrvn4oIm0_ZKtTSw
Thank you all for your covering them in prayer. I will keep you posted as I am updated
We just got an update on Ally. They are moving her to Stanford Hospital. After Joe and Lisa talked with the doctor this afternoon, the doctor said she had been in contact with Stanford regarding Ally and that this would be the best place for her right now. She will be transported there in a couple hours and will remain there for at least 10 days. They are doing more test and as they know more about them and the results I will keep you updated. Please keep this family in your prayers as they continue to get more answers. Pray for their travels as this place is farther away from home. Pray for Ally as she has endured a lot already and has been so brave and strong. Pray for Kaitlynn and Morgan as they will have one parent at home again for a while.
If you would like to help in anyway please email me @ heathrriis@sbcglobal.net. There is also a link for meals if you wanted to sign up.
http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.takethemameal.com%2Fmeals.php%3Ft%3DAXRB8317&h=wAQCM8YqfAQDKgaqFA8RPaU6GHrcdwdSrvn4oIm0_ZKtTSw
Thank you all for your covering them in prayer. I will keep you posted as I am updated
Thursday, September 8, 2011
Meals for The De Monts
If you would like to help the De Monts and bring a meal to them you can follow the link below! Thank you all for your support and help through this but most of all your prayers.
http://www.takethemameal.com/meals.php?t=AXRB8317
http://www.takethemameal.com/meals.php?t=AXRB8317
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