Ally Update

This post is a little long since we have not posted in awhile. 

Stanford - While at Stanford Ally's diagnosis was confirmed. She has Limbic Encephelitis which is inflammation in the limbic system of her brain. Also Ally's encephelitis is a Auto-immune encephalitis – caused by her own immune system reacting against itself. We were able to come home last week because there was no point in sitting in a hospital room waiting to see if the treatment has helped. When we saw her neurologist this past Tuesday she was happy about her improvement.

Treatment Plan - Limbic encephelitis does not have a specific drug or treatment plan because every child's case is different. We know for Ally the IVIG hemiglobin transfusions and steroids have been working on helping with the swelling and have made improvements on the encephelitis. Ally will have another round of IVIG next weekend but only should have to be in the hospital in Oakland for 3 to 4 days. Then we wait to see what imrpovement she makes.

How is Ally doing ... That is the question of the day. She's definately the best we have seen her over the last month to month & a half. Ally has been able to go to school for a couple of hours this week, and her memory has gotten better.  As thankful as we are for the improvements she is making we are still very aware that the encephelitis is not gone. She still has personality changes, is extremely emotional, and everything has a sense of urgency to her.

Prayer Requests ...
Continued healing
That Ally can go handle go back to school next week even if only part-time
Patience for Joe and I
Dr.'s wisdom on what to do next

Thanks for all of the prayers and support.

Lisa